Friday, August 13, 2010
Exchange Surgery Aftermath
Also, triumphantly, I had NO nausea this time around! Hooray! Some lovely ladies on BRCA Sisterhood on Facebook mentioned a nausea patch to me after I explained my terrible nausea following the mastectomy. I asked my PS and she ordered it during my preop appointment and I picked it up at the pharmacy. The patch was called a scopolamine transdermal patch that I placed behind my ear the morning of the surgery and wore for 72 hours. It was so wonderful to wake up and not feel like absolute crap! Supposedly my PS came and talked to me afterwards and I don’t remember that at all, even though my husband says I was talking, smiling and thanking people. :)
I am very thankful to my plastic surgeon and the anesthesiologist for their hard work. My PS did a wonderful job making my “foobs” look like natural breasts. I’m pretty sure if you didn’t know any better you would think they were natural and that’s not just with clothes on! However, if I’m being totally honest I am still trying to get used to them. I feel like they are smaller than my real breasts were and my PS must have felt so as well, because she said she would have liked to have put 1000cc implants in, however, silicone only goes up to 800cc. Oh well. I also sort of feel like they need to be over toward the middle a little bit more…you know how with natural breasts there is space between them, but then when you put them in a bra they push together a bit? Well, they probably look natural because of the space which is great, but they don’t really move...at least right now since I still have stitches and pain I haven’t exactly tried hard, but in any case I almost worry they look too far apart. Whatever. I’m sure it’s too soon to actually tell anything. I need to wait and see how they settle and what they look like in several months, so I guess I’m being too critical and picky, but that’s just kinda how I feel at the moment. Hope that’s not TMI, but just thought I’d share what I’m really feeling for those who may go through all of this at some point – trying to keep it as honest as I can!
Until next time, here’s to a quicker recovery, being healthy, and (tada!) silicone!! :)
Monday, August 2, 2010
Back on the Table
So, here it comes, the second big day. My exchange surgery is scheduled for Thursday August 5. To remind those of you unfamiliar with the process, this is the surgery where the plastic surgeon removes the expanders that are underneath my chest muscle and replaces them with the implants (silicone in my case). Some of the lovely ladies with BRCA Sisterhood on Facebook call it Operation Squishy Boobs. I love that! The expanders are very firm and are unmovable. They are not too tight or majorly uncomfortable right now for me because instead of sequential fills to slowly expand the expanders, my plastic surgeon added all 800cc right off the bat during the original surgery. So, I am fairly used to the extent to which my muscle is stretched. However, the silicone implants should feel more soft and pliable, hopefully a bit more natural. In addition, as I mentioned in my previous post right now my breasts are very uneven and under my underarms instead of towards the center of my chest as they should be. This is something else that the surgeon will take care of during the exchange surgery.
This surgery is going to be much less traumatic than the prophylactic double mastectomy with reconstruction surgery in April. For example, the surgery is going to be performed at the clinic closer to my house, as opposed to the larger clinic/hospital the initial surgery was done at. Also, the first surgery was about 6 hours long and this one is supposed to only be a couple of hours and then it is outpatient where I go home right after. I am sure I will still feel pretty beaten up, sore and tired, but nothing like how I felt after they took out all of my breast tissue from the bottom of my breasts to my collar bone. I will have lifting restrictions for 1-2 weeks, depending on how I am recovering. My plastic surgeon also told me it is a 50-50 chance of having drains, so I am keeping my fingers crossed that I get the 50% chance of NO drains! But I will deal with them of course if that’s what needs to happen. The drains, which I explained more here, are not the worst things ever, just a bit of a nuisance.
It is strange how fast this surgery snuck up on me. In some ways it felt like it was taking a long time to get here, but looking back the last 3+ months went by very fast! I was originally hoping to have the exchange surgery at the end of July, but then ended up having to wait for one part of the right side to finish healing. To explain, when I woke up from my original surgery I had a blue tattoo-looking area (if you put the tips of your thumb and forefinger together it was about the size of the space in between, just larger than a quarter). This was from the dye used to determine which sentinel lymph nodes to remove and it didn’t happen on my left side and I don’t think it is very common. My body did not take kindly to that dye and it stayed for weeks and then the top layer of skin finally started to peel, but then it turned into a thick scab. After a bit, the plastic surgeon removed the scab explaining that at a point it is doing more damage than good because water can get trapped underneath and bacteria start to grow. So, once she removed that scab I had a crater on my boob that was kinda gross and took forever to heal completely. Once it did heal about 2.5-3 weeks ago, my plastic surgeon felt comfortable with scheduling my exchange surgery. She wanted to give my skin a few weeks to be healed and give the scar a chance to shrink, etc. before she performed another surgery. Sorry if that was TMI, but I wanted to give an explanation for others who may find themselves in the same situation at some point.
So overall I am in good spirits. I am nervous, but less so than for the mastectomy. This time I already have a nausea patch that I asked my doctor to order since I had such a rough time with the anesthesia and medications last time…sensitive stomach! I am hoping I may actually be able to wake up from the anesthesia and feel well enough to even think about looking down at my chest as I have read about others doing! It is a relief to know that I am *hopefully* almost done with this portion of the prophylactic surgeries. If all goes well and I don’t need any revisions, I will be done with the breast portion and the ovaries will be next…when I’m 35.
I am very appreciative to all of my family and friends for all of their wonderful support throughout this BRCA experience. I have had such sensitive, kind responses to my decisions and I am so thankful for everyone. I am especially very grateful to my husband who has been truly amazing during, well, the entire time I’ve known him, which goes back to high school and being there for me during my Mom’s death. He is more than words can describe and I love him more deeply with each passing day!
Until next time, here’s to no more rocks on my chest, squishy boobs, and silicone!!! J
Thursday, July 15, 2010
Boobs, Boobs, The Magical...Fruit?
Needless to say, I’m jealous! I’m jealous of small boobs, big boobs, perky boobs, saggy boobs, bouncy boobs. Pretty much, any boobs, but mine! As one of my friends has mentioned – I have boob brain! I am wearing clothes to camouflage my unevenness. A shirt under a button-up shirt, shirts with something distracting to the eye, shirts that have coverage “frill” around the cleavage area, etc, etc. I would love to just wear a regular t-shirt or tank top! And I know, I know. This is only temporary and my plastic surgeon will fix everything and make it all look “normal” during my exchange surgery. My husband is so sweet and keeps reminding me that it’s only temporary. Yeah, yeah. :) That doesn’t help me right now when I go to my closet and try to find one of the 4 shirts that actually help conceal my dysfunctional chest!
I know I do not have to live with my step-like chest for too much longer. It is just frustrating at times. It’s not like my natural breasts were perfect. They were fairly saggy after breast-feeding two babies and were actually a tiny bit uneven themselves. However, they could be placed in a bra and viola! They looked pretty great in a shirt – if I do say so myself. Of course, that could just be elaborate fake memories I am giving myself to feel better? These imposters under my chest muscle do not budge. I am not allowed to wear an underwire bra, but pretty certain it wouldn’t do the trick anyway. A sports bra can tug lefty up a tiny bit, but not enough to get away with wearing a t-shirt. I even feel very self-conscious in, ahem, intimate moments with my husband.
On the other hand, being perfectly honest, things are actually moving along nicely. With rightie finally healed, my plastic surgeon said we could start the ball rolling on scheduling the exchange surgery. She wants a few weeks to keep an eye on the new scar, see how it shrinks, etc. The temporary boobs finally have an end in sight! *Sigh of relief!* My husband helps me remember how wonderful my plastic surgeon is and how I need to trust that she will do her job and make everything look great. I know, I am trying! That really is supposed to be her job, right? She has done a lot of breast reconstructions, following mastectomies. She doesn’t seem in the least bit concerned about my unevenness now and says she will fix all of that during the exchange. So, okay - I need to trust in her and be patient. I need to suck it up and deal with what I’ve got. It definitely could be a ton worse and I am so very lucky at how well things have gone so far, considering. I’ll just have to admire others seemingly perfect racks and believe that I will be back to looking “normal” soon, with a shirt on anyway.
Until next time, here’s to boobs, boobs and more boobs…oops I mean silicone! :)
Tuesday, June 22, 2010
A Chance to Give Back!

There have been several organizations that have been irreplaceable during my BRCA journey, including the BRCA Sisterhood (on Facebook), the Young Breast Cancer Survivor Group at my hospital and the FORCE (Facing Our Risk of Cancer Empowered) organization (http://www.facingourrisk.org/). FORCE is an organization that has been very helpful to me and my family during our BRCA journey. The FORCE community gives people a place to share and get support and information on hereditary breast and ovarian cancer. It is a community where others understand what you or your loved ones are going through. I have found it extremely helpful to learn more about what other women have been through and found it useful in preparing myself prior to my surgery. The message boards are a safe place to ask questions, talk about your fears and concerns and talk to women who have been through similar experiences. My city even has a FORCE support group that I have attended. They also have a yearly conference that involves experts in hereditary cancers, physicians, surgeons, and information on understanding your risks, surveillance, surgery, healthy living, support groups and so much more. It is a wonderful support base.
Okay, so this is really unlike me to ask others for something...but I have found the FORCE organization to be very helpful during my quest for answers and support during my BRCA journey. If they were to place high enough in the Chase Community Giving Campaign it would be very beneficial to many people. The FORCE website was one of the first places I went when I found out about my BRCA1+ status because my sister had already been going there for a few years. If you have a free minute, your vote would count and could help numerous people. Below is some information explaining the Chase Community Giving Campaign, more information about FORCE and how you could vote to help a wonderful organization. Voting really is quick and easy! Thank you so much for your support!
What is Chase Community Giving?
In a nutshell, Chase has a campaign on Facebook and is going to be giving away a total of $5 million dollars to be split between 200 charities. The charity with the most votes will receive $250K, 4 runner-ups will receive $100K, and 195 charities will receive $20K.
What is FORCE?
FORCE is the only national nonprofit organization dedicated to serving the needs of and improving the lives of individuals and families affected by hereditary breast and ovarian cancer (such as BRCA mutants like me!). They provide lifesaving information on the latest medical treatment and risk management, resources, and awareness.
Voting on Facebook starts June 15, 2010 and 200 winning charities will be announced on July 13, 2010.
What would FORCE do with the money if they won?
For starters:
$1,000 delivers the latest in BRCA research and information to 500 families.
$500 gives 60,000 visitors access to their website for one month.
$300 provides a scholarship to FORCE’s annual conference to one person that could not otherwise attend.
$200 provides life-saving information to 100 people through their newsletter.
$100 provides phone-based support and resources via the Helpline for one month.
$50 provides a package of informational brochures to doctor’s offices and hospitals.
Just think – if $2250 can do all of that – how much good could be done even if we only place among the bottom 195, and win the lowest amount of $20,000! That’s a whole lot of help, to a whole lot of people!
FORCE’s MISSION
“To improve the lives of individuals and families affected by hereditary breast and ovarian cancer.”
To this end, FORCE has eight mission objectives:
• To provide women with resources to determine whether they are at high risk for breast and ovarian cancer due to genetic predisposition, family history, or other factors.
• To provide information about options for managing and living with these risk factors.
• To provide support for women as they pursue these options.
• To provide support for families facing these risks.
• To raise awareness of hereditary breast and ovarian cancer.
• To represent the concerns and interests of our high-risk constituency to the cancer advocacy community, the scientific and medical community, the legislative community, and the general public.
• To promote research specific to hereditary cancer.
• To reduce disparities among under-served populations by promoting access to information, resources and clinical trials specific to hereditary breast and ovarian cancer.
Why is all of this important? As someone who has a BRCA genetic mutation, having an organization like FORCE on my side is invaluable. Without knowledge of what these genetic mutations mean, people can and do die from hereditary breast and ovarian cancer. Spreading information saves lives, and provides much needed peace of mind, education, and emotional support for those of us afflicted with this mutation.
If you are on Facebook then it’s very simple to vote. First click here:
The next step is to join the movement by scrolling down just a little bit on the page & clicking the ‘Like’ button.
Next step: Click the big green ‘Search’ button and copy this text: Facing Our Risk of Cancer Empowered and paste it in the box that says ‘Charity Name.’
Click the big blue ‘Search’ button to the right of that.
After you click that, you’ll see Facing Our Risk of Cancer Empowered in blue lettering. Click it.
Scroll down & check the box that says: “Please display my name and profile picture below so this charity knows it can contact me to get more involved.”
Click submit. A ‘Request for Permission’ box will pop up. Click ‘Allow’.
Vote – and share with your friends, and ask them to share with their friends, and so on.
I really appreciate your consideration in voting for FORCE. Although you are only able to vote for each organization one time, you have 20 votes total, so you can look at helping other organizations close to your heart as well! Thank you very much to anyone who is able to vote! I really appreciate your support! :)
Until next time, here’s to FORCE, Chase Community Giving and silicone!
Thursday, June 17, 2010
One Sweet Day
Wednesday, May 26, 2010
One Foot on the Other Side
So technically I have one foot on the other side. I have my initial surgery behind me, but still have my exchange surgery yet to come. As a reminder, that’s the surgery that involves going back through the original incision site, removing my expanders and replacing them with silicone implants. It won’t be for another couple months still. One of the strangest things is to have the mastectomy finished. What I mean by that is that this was a long time coming. I found out about my BRCA1 mutation in April 2008 and from that moment on, I pretty much knew at some point I would be having a mastectomy. But I gave myself time. Time to think, ponder, research, discuss, soul search…you name it. So it’s different to be on the other side of things. Now instead of - I’m going to have a prophylactic bilateral mastectomy because my breast cancer risk is almost 90%; it’s, I had a prophylactic bilateral mastectomy to reduce my risk of breast cancer to below normal population. “I’ve had a mastectomy.” Those words are still a bit awkward coming off my tongue. Not that I have any regrets, just that it’s almost surreal that all of this has already taken place. Prior to surgery everything feels like a huge waiting game. Waiting to see if you are positive for a mutation, waiting to discuss options with surgeons, scheduling appointment after appointment (whether for information, check-ups or preventative screenings), making well-informed thought out decisions, scheduling the surgery and then w a i t i n g for the surgery date to finally come. Now that the mastectomy is behind me, I can move forward with my life without constantly waiting for that breast cancer diagnosis.
It’s a very strange feeling physically, as well. I told my husband about two weeks post-op that it would be nice when I didn’t always “feel” my boobs. The expanders are behind my pectoral muscle stretching it in order to create a pocket for an implant to eventually sit. So the key word here is stretching. My PS apparently filled my expanders to the whopping 800cc that I was planning on being filled up to when all of my fills were complete. Normally, the expander is filled a bit during the initial surgery (my PS had originally said maybe she would be able to get 400cc or so in them at first) and then slowly filled every few weeks with usually 50-100cc each time. I guess since I did a skin-nipple-sparing surgery she wanted to fill out as much as she thought my muscle could take. Possibly in order to maintain the skin and not have it shrink and cause wrinkling and dimpling. Whatever the thought process, I am filled. There is a constant tightness and pulling on my chest, so I am always aware it’s there. It’s not something I could have imagined prior to the surgery. The expanders are also very hard themselves, so underneath a muscle and stretching it to its max makes the outer “interim” boobs feel solid, not soft and squishy like natural breasts. And it’s just a strange feeling. As my sweet husband keeps reminding me – it’s only temporary - at least the strange hardness, unevenness and outer “damage” that should be fixed by or healed before the exchange surgery.
I knew heading into this whole experience there would be unexpected outcomes, speed bumps, changes of plans and emotional and physical changes. However, everything I have to go through now is so worth what I am gaining – My LIFE. I can look toward the future and not feel like I am constantly waiting for a breast cancer diagnosis. I can know that I did everything in my power to protect myself from having to battle this terrible disease as so many brave, courageous women do. I constantly repeat back to myself the words my husband said to me right after my surgery, “You just saved your life.” He’s amazing and I love him so deeply for being my soul mate and knowing exactly how to help me through anything.
Here’s to a clear head, looking towards the future and silicone!
Tuesday, May 4, 2010
Aaaahhhhh Freedom
I had my post-op appointment today with my plastic surgeon. It was a great appointment for many reasons. First, I got my drains removed! For those who want to know because they are trying to make their own surgery decisions or learn more about this surgery I will give a little detail. Sorry if it’s TMI for others who are supporting me by reading my blog – just want to give people as much info as possible if they are trying to make their own decisions! So, drains are placed during the surgery to remove excess blood, fluid etc from the surgical site and I believe I remember my surgeon saying it helps speed up the recovery process. Thin tubes are placed in the surgical site before they close up and the tubes exit the body through a small incision that has one or two sutures to hold the tube in place. The ends of the tubes have bulbs attached that create suction to withdraw the fluids. The drains have to be emptied about every 12 hours [thanks to hubby :) , but can be done by yourself ] and in order to be removed the amount of fluid draining has to be below a certain volume within 24 hours. The drains are not terrible and they’re not painful, just kind of annoying. It is a bit hard to find a place to “hide” them. I just had them pinned to the upper part of my surgical vest, but there are special bras made with places to hold them. I found myself a bit worried I would accidentally yank on the tube and cause a problem, but now that they were removed I see that it would have taken a pretty big tug to probably even budge the tube without having the sutures cut. So that’s a positive! It didn’t hurt to have them removed, but was just uncomfortable for the few seconds the plastic surgeon pulled them out after cutting the sutures. Overall, I am relieved to have them out and not have any other foreign objects protruding from my body. Now, no more IV’s, no weird tubes – well at least until my exchange surgery!
In addition, I received a phone call from my breast surgeon’s office. All of my pathology came back normal!! That was a huge relief because if I’m being totally honest, there was a part of me that truly thought they might actually find something, even if it was just really early stages, like precancerous. I know that’s not a good way to think, but obviously I didn’t think everything was always going to be hunky-dory or I wouldn’t have had the surgery. I didn’t think I already had cancer, but I did wonder about tissues beginning to show signs of turning on me. I am still 7 years away from when my mom found her breast cancer though, so I made my pre-emptive strike early enough. It was a wonderful feeling to know the results were good. That also meant there were no suspicious findings of the tissue that was directly under the nipples. The tissue removed from underneath the nipples was specially tagged for pathology to look at closely. If something suspicious was found then I would need to remove them too.
Additionally, my husband and I had about a thousand questions for the plastic surgeon today. She answered all of our questions and didn’t make us feel rushed or like we were being stupid. I really love my surgeons – they are both such wonderful women and so caring. As I mentioned in my last post, they really try to prepare you by telling you that your chest is going to look and feel like it got run over by a truck. They aren’t kidding. My skin ranged from all colors from yellow, gray, blue, purple, dark, dark purple and all colors in between! But each day it gets less and less. Also, I have a dark blue spot on my skin on the right side which was caused from dye they use to find and remove sentinel lymph nodes. Just to inform others, my doctor told me that it was nothing to worry about, but it does take a long time for the dye to fade.
Overall, I am so thankful to have my drains out and to be feeling better each day. I am regaining motion of my arms and shoulders and able to do more things for myself. That has been difficult to not be able to do things that are taken for granted when I am completely healthy, like brush and wash my own hair, or reach up for something on a shelf or even opening a car door (their heavier then you think!). But every day is an improvement from the next and I am so thankful I was healthy before the surgery so I am able to recover as quickly as I am. It’s a good day!
Until next time, here’s to no drains, washing your own hair and silicone!