So, I just posted my few weeks following my revision surgery because I didn’t get it posted before we left on vacation. Now at almost 6 weeks post-op, I wanted to give an update of how things have been since then.
First, I am pretty sure I have almost all of my energy back! I haven’t been feeling anywhere near as tired as those first couple weeks. I wish I could honestly say no more naps, however, …oops! For the first time in over a year, my body’s defenses let down and I got whatever bug is going around. First, I woke up barely being able to talk, which lasted for almost a week. Then that turned into a lovely sinus infection (while we were on vacation!) and a cough. Antibiotics quickly helped with the sinus infection, but I still have a cough. Needless to say, over our vacation I took a few naps just because of how crummy I was feeling. Who knows?! I could have been tired due to my surgery and whatever buggy I caught! Either way, I am now feeling pretty good!
I have been lifting more and more. I held off on heavy lifting for as long as I could because I really wanted the internal stitches encompassing the pocket to heal and remain put this time around. I don’t know what caused the pockets to disappear following the exchange surgery, but I was not taking any chances. So, until I had to load up the suitcases into the car for our vacation (hubby was on business!), I hadn’t been doing too much strenuous lifting. Now I’m pretty much back to the norm – carrying several grocery bags at one time, lugging the folded laundry upstairs, picking up one of the boys to place them in a cart, etc.
In between the exchange and revision surgeries, I had explained briefly how having the implants under the chest wall muscle deformed the implants with certain movements (see post). As, I stated previously, I know that was probably something only I was aware of, but it still really bothered me. I have noticed following this surgery that there is much less deformity during those same movements. Maybe it was due to the fact that the implants had fallen out of their pockets before the revision surgery and there was the ability for movement of the implant and deformity of the surrounding skin? No matter what the reason, I am very happy to not be seeing that so much now! Well, at least to a much lesser extent.
Last week I had another post-op appointment. It went really well! I still have a small area (where it popped open before, see post) underneath the right breast that is not completely healed. It is still about the size of the tip of a pencil eraser, so not too bad. Also, on the left side underneath there is a small area that still hasn’t finished healing either. My plastic surgeon (PS) said that it was probably an abscess where a suture was. She figured it would take at least several more weeks or a month or more for everything to finally be fully healed. It’s weird how if you get a cut or something fairly superficial, your body normally closes up the wound and heals pretty quickly. Actually, the majority of my incisions healed up very quickly. However, there are a few times now after being cut open 3 separate times in one year my body has just taken its sweet time finishing the job. Very soon I should be healed with no open “wounds” and hopefully done with surgeries (at least until it’s the ovaries’ turns).
So far, the placement of the implants is great and I am pretty sure they still look natural. Thank you to my PS, who has done an outstanding job keeping them looking as natural as is possible in these circumstances! As a reminder to those who are new to my blog, last April, my breast surgeon removed all of my breast tissue from my collar bone down to underneath each breast. Then my PS placed expanders, followed by implants, underneath the chest wall muscle. So needless to say, there really isn’t much for her to work with. If the implants do not stay in their new “homes” I will have foobs that go down to my waist, like before my revision surgery. (Okay, that is a little bit of an exaggeration, but you get my point!) And if my PS had made the pockets too tight, my foobs would be very round and not look natural. She has done a great job though. I am fairly certain they look pretty normal to the casual observer. Although this could just be wishful thinking or the fact that this is my new “normal” and I am actually starting to get used to it! My PS did say there will probably still be some dropping due to gravity, but I am going to try to wear very supportive bras and still wear a light one at night to help them stay as close to where they are as possible!
At the end of the appointment my PS decided to take pictures. (I can’t remember if I’ve mentioned this before, but right before the mastectomy and in between the other two surgeries, they took pictures from different angles so they would have the progression of the results.) I was pretty happy about that just because that meant she felt we were at the end. At least complete enough for a (somewhat) final picture. Additionally, she made my day when she said she didn’t want to see me again for 3 MONTHS!! Yes, I said months! That is the longest I’ve gone without seeing her for about a year and a half, maybe longer due to all of the preparation, decisions and appointments prior to the mastectomy! I was thrilled! Even the girl making my next appointment commented, “Wow! Three months!” My PS said 3 months, then after that 6 months and then only once a year! But of course if I have any issues I can see her earlier. It may seem weird to be so excited about that, but it makes me feel like the whole process is coming to a close. And that feels WONDERFUL!! :)
Until next time, here’s to the return of energy, accepting a new norm and silicone where it should be! :)
Tuesday, April 19, 2011
Thursday, April 14, 2011
Post-Revision Surgery Update
Sorry for the delayed posting! I had this post mostly typed up and then I got caught up getting the family prepared for a 1 ½ week vacation and left on vacation! Below is information regarding the first couple of weeks following my revision surgery.
Here's an overview of the week of my surgery (Tuesday, March 8). I only took Vicodin for the first couple days following surgery and even then I only took 2 or 3 a day. On Thursday morning (2 days after my surgery) I had taken a Vicodin, but still had a pretty bad headache. I remembered I had ibuprofen from one of the earlier surgeries, so I took that and not only did my headache go away, but it actually seemed to help with the tightness and soreness better than the Vicodin. Go figure! My stupid body can’t handle strong drugs, like, morphine or dilaudid, and the Vicodin never really gets rid of my pain. I think it just takes a bit of the edge off the pain and makes me feel a little fuzzy headed. So, from Thursday afternoon on I stopped taking the Vicodin and started taking Ibuprofen. Additionally, the anti-nausea patch (transdermal-scopolamine) made my head fuzzy too; especially my eyes. When I tried to read something, a clock, a book, something on the t.v., my eyes just could not focus and everything was pretty fuzzy. I was supposed to leave the patch on for 72 hours, so I removed it Friday morning. It took awhile for the effect to wear off, but eventually it was much better. So, by taking that off and stopping the Vicodin I was starting to feel much less foggy.
Saturday I got worn out just by sitting at the park watching the boys play with their cousins. Pathetic, huh? Sunday I was still trying to get past the anesthesia fog and tiredness. Just sitting through church service wore me out! I still took a nap and I was still very tight, sore and had minimal pain. My sweet husband did so much on Sunday to make as little work for me to have to do when he went back to work on Monday. He said he wanted to get as much done as he could because he wouldn’t be here to help and he knew it would be tiring for me to just get back to some of the normal things like driving, dropping and picking up the boys, making everyone’s meals, regular cleaning up after the boys, helping with homework (plus working on a science fair project), etc. Plus, my nephews were in town staying with my dad and we had them spend the night Monday, so they could play with the boys. So even though I had 4 boys at the house ages 9, 7, 6 and 4, I did pretty well on Monday. My dad was sweet and took the boys for a little during the afternoon so I could take a nap and rest a bit.
By Tuesday (1 week after my surgery), things really turned. I woke up pretty tired on Tuesday morning, but after making the boys muffins for breakfast (pretty big feat actually! It’s harder to grab things from the cabinets, pour and stir then you think!), having a cup of coffee and taking a nice hot shower, I was actually feeling really good! I was quite a bit more mobile and I was feeling happy with the placement of everything following surgery. After my exchange surgery in August, right away I remember not being happy with placement. The implants already seemed a bit low, not to mention being smaller than my natural breasts. Needless to say, it was a bit frustrating. On Tuesday, however, I was relieved that this surgery seemed to fix the problems. They will still be smaller than my natural breasts, but I think now that they are placed where they’re supposed to be they look very similar to how my natural breasts did with a bra. The scars aren’t bad. As expected, there is still a scar underneath each breast. However, she also made a small vertical incision from each nipple down to the original incision. This was to get rid of extra skin due to all of the stretching when the pockets disappeared after the last surgery. Also, in order to tighten things up inside to make sure the pockets stay secure this time around, there are a couple folds and puckers of my skin to the sides of my breasts. My surgeon felt a little bad because of those, but I told her they didn’t bother me. I would much rather have a few folds and imperfections and have everything stay where it is this time. I would prefer to not have another surgery. I had my appointment that day with my plastic surgeon (PS) and she said everything was healing well, so she removed my external sutures! That was nice because they are kind of itchy and a bit uncomfortable.
Wednesday my hubby had to leave town again. Just for three days, so not too bad. My right side underneath was bothering me a bit and I noticed my PS had left a suture. It was directly in the middle on the underneath incision right where the vertical incision meets. I didn’t remember her saying she was going to leave one, so I figured it was accidentally. That area was a bit more achy during the day and in the afternoon I noticed right above that suture on the vertical incision the skin had pulled apart and was gaping slightly open. Because it is on the underneath area of my breast I could only see it with a smaller mirror and it was really difficult to tell how much it was open and if it was bad or not. It oozed a little blood color at first and then a light red-pink. I decided to call it safe and called my PS’s office, but it was already almost 5. They made me an appointment for the next morning. I had placed a butterfly band-aid over that part to be safe and make myself feel like something was holding it together. If I’m being honest I worried myself a little. The actual opening wasn’t a very large portion, but it was right on the part of my breast where there is the most pressure and weight from the implant. So, I started to worry about it splitting open more and causing problems. However, Thursday morning it already looked much better. I’m pretty sure the nurse who saw me probably thought I was being paranoid, but I just couldn’t tell how bad it was by myself!
Thursday to Thursday (March 17-24), was getting back into the swing of things. I was feeling a lot better, but still got tired and worn out fairly easily. I had sharp twinges and pain when I tried to move in certain directions, but there was not a constant tightness as there was initially after the surgery. It was strange to forget my “constraints” and reach my arm in a specific way and feel sudden, sharp pain. These were mostly from the right side where the more prominent fold is. I believe the pain was from where the internal stitches are and I just had to work with it and stretch it out over time. I was still being careful on heavy lifting because I really didn’t want to ruin anything. I didn’t want to assume I could lift or push/pull something and then affect the pockets or sutures, so I was playing it safe. Better safe than sorry, right?
Well, that’s a quick update for the couple of weeks following my revision surgery. I will post again very soon with a more recent update. Thanks for hanging in there for this long detailed post! :)
Until next time, here’s to naps, regaining energy and progressive healing. :)
Here's an overview of the week of my surgery (Tuesday, March 8). I only took Vicodin for the first couple days following surgery and even then I only took 2 or 3 a day. On Thursday morning (2 days after my surgery) I had taken a Vicodin, but still had a pretty bad headache. I remembered I had ibuprofen from one of the earlier surgeries, so I took that and not only did my headache go away, but it actually seemed to help with the tightness and soreness better than the Vicodin. Go figure! My stupid body can’t handle strong drugs, like, morphine or dilaudid, and the Vicodin never really gets rid of my pain. I think it just takes a bit of the edge off the pain and makes me feel a little fuzzy headed. So, from Thursday afternoon on I stopped taking the Vicodin and started taking Ibuprofen. Additionally, the anti-nausea patch (transdermal-scopolamine) made my head fuzzy too; especially my eyes. When I tried to read something, a clock, a book, something on the t.v., my eyes just could not focus and everything was pretty fuzzy. I was supposed to leave the patch on for 72 hours, so I removed it Friday morning. It took awhile for the effect to wear off, but eventually it was much better. So, by taking that off and stopping the Vicodin I was starting to feel much less foggy.
Saturday I got worn out just by sitting at the park watching the boys play with their cousins. Pathetic, huh? Sunday I was still trying to get past the anesthesia fog and tiredness. Just sitting through church service wore me out! I still took a nap and I was still very tight, sore and had minimal pain. My sweet husband did so much on Sunday to make as little work for me to have to do when he went back to work on Monday. He said he wanted to get as much done as he could because he wouldn’t be here to help and he knew it would be tiring for me to just get back to some of the normal things like driving, dropping and picking up the boys, making everyone’s meals, regular cleaning up after the boys, helping with homework (plus working on a science fair project), etc. Plus, my nephews were in town staying with my dad and we had them spend the night Monday, so they could play with the boys. So even though I had 4 boys at the house ages 9, 7, 6 and 4, I did pretty well on Monday. My dad was sweet and took the boys for a little during the afternoon so I could take a nap and rest a bit.
By Tuesday (1 week after my surgery), things really turned. I woke up pretty tired on Tuesday morning, but after making the boys muffins for breakfast (pretty big feat actually! It’s harder to grab things from the cabinets, pour and stir then you think!), having a cup of coffee and taking a nice hot shower, I was actually feeling really good! I was quite a bit more mobile and I was feeling happy with the placement of everything following surgery. After my exchange surgery in August, right away I remember not being happy with placement. The implants already seemed a bit low, not to mention being smaller than my natural breasts. Needless to say, it was a bit frustrating. On Tuesday, however, I was relieved that this surgery seemed to fix the problems. They will still be smaller than my natural breasts, but I think now that they are placed where they’re supposed to be they look very similar to how my natural breasts did with a bra. The scars aren’t bad. As expected, there is still a scar underneath each breast. However, she also made a small vertical incision from each nipple down to the original incision. This was to get rid of extra skin due to all of the stretching when the pockets disappeared after the last surgery. Also, in order to tighten things up inside to make sure the pockets stay secure this time around, there are a couple folds and puckers of my skin to the sides of my breasts. My surgeon felt a little bad because of those, but I told her they didn’t bother me. I would much rather have a few folds and imperfections and have everything stay where it is this time. I would prefer to not have another surgery. I had my appointment that day with my plastic surgeon (PS) and she said everything was healing well, so she removed my external sutures! That was nice because they are kind of itchy and a bit uncomfortable.
Wednesday my hubby had to leave town again. Just for three days, so not too bad. My right side underneath was bothering me a bit and I noticed my PS had left a suture. It was directly in the middle on the underneath incision right where the vertical incision meets. I didn’t remember her saying she was going to leave one, so I figured it was accidentally. That area was a bit more achy during the day and in the afternoon I noticed right above that suture on the vertical incision the skin had pulled apart and was gaping slightly open. Because it is on the underneath area of my breast I could only see it with a smaller mirror and it was really difficult to tell how much it was open and if it was bad or not. It oozed a little blood color at first and then a light red-pink. I decided to call it safe and called my PS’s office, but it was already almost 5. They made me an appointment for the next morning. I had placed a butterfly band-aid over that part to be safe and make myself feel like something was holding it together. If I’m being honest I worried myself a little. The actual opening wasn’t a very large portion, but it was right on the part of my breast where there is the most pressure and weight from the implant. So, I started to worry about it splitting open more and causing problems. However, Thursday morning it already looked much better. I’m pretty sure the nurse who saw me probably thought I was being paranoid, but I just couldn’t tell how bad it was by myself!
Thursday to Thursday (March 17-24), was getting back into the swing of things. I was feeling a lot better, but still got tired and worn out fairly easily. I had sharp twinges and pain when I tried to move in certain directions, but there was not a constant tightness as there was initially after the surgery. It was strange to forget my “constraints” and reach my arm in a specific way and feel sudden, sharp pain. These were mostly from the right side where the more prominent fold is. I believe the pain was from where the internal stitches are and I just had to work with it and stretch it out over time. I was still being careful on heavy lifting because I really didn’t want to ruin anything. I didn’t want to assume I could lift or push/pull something and then affect the pockets or sutures, so I was playing it safe. Better safe than sorry, right?
Well, that’s a quick update for the couple of weeks following my revision surgery. I will post again very soon with a more recent update. Thanks for hanging in there for this long detailed post! :)
Until next time, here’s to naps, regaining energy and progressive healing. :)
Thursday, March 10, 2011
Disappearing Pockets
I had my revision surgery Tuesday afternoon and things went well. Total time for all of it, plus waking up in recovery was about 4 ½ hours. I am in some pain and very sore, as expected. The Vicodin, for me, doesn’t actually get rid of the pain, but lessens it enough to be manageable. As a reminder, I had this revision surgery because both implants had fallen, so much so they seemed like they were not in the pockets that are supposed to hold them in place. After this surgery, my plastic surgeon (PS) told my husband that once she got inside she couldn’t even find where the original stitches had been. So, the implants really didn’t have the support they needed. This time she put in permanent stitches, instead of dissolvable stitches. She also added allo-graft (not sure exactly which kind, cause I was not all there!) to assist in making the pockets as sturdy as possible. I’m sure the majority of my pain right now is from the tight internal stitches, and let’s face it, being cut open. That’s never pain-free. Just think about how a stupid paper cut hurts and they are usually superficial tiny cuts!
Right away I notice a difference in placement of the implants. In August, after my exchange surgery, I already felt like the implants were falling and sitting pretty low. This time they are much higher up and not saggy at all. I know they will drop and settle a bit, but I think that would be a good thing as long as it’s not too far. I still really want them to look as natural as possible and so far my PS has done a great job at helping them look normal and I really appreciate that.
On a positive note - I had NO NAUSEA again! The scopolamine patch does wonders! The anesthesiologist also had me take Emend and put some other anti-nausea medication in my IV. It is really such a relief to wake up and not feel horrendous, like after my mastectomy surgery. I am so appreciative to the women on Facebook BRCA Sisterhood for their support and telling me about the scopolamine patch! I am sooooo thankful! Another positive note – NO DRAINS!! As I said in my previous post, my PS thought I would probably have drains in this time, so I had prepared myself to have those pesky things hanging from my body. However, when I woke up in the recovery room and asked about drains…viola!...no drains this time! It is just one less annoyance, two less scars and no worrying about accidentally pulling them out.
As of right now, I’m sitting in a relaxing recliner chair and only in minimal pain and discomfort. I still feel fuzzy and tired, probably from the anesthesia. My sweet, sweet husband is taking care of me and everything else, while working from home! He’s done everything from taking the boys to school, helping me with a shower and brushing my hair, making me a yummy lunch and breakfast, refilling my ice bags and even gives me “the LOOK” when I try to get up and get myself a glass of water. I am so blessed to have the most amazing, loving and thoughtful husband. He is wonderful!
Until next time, here’s to a quick recovery, no more surgeries and silicone that stays where it should! :)
Right away I notice a difference in placement of the implants. In August, after my exchange surgery, I already felt like the implants were falling and sitting pretty low. This time they are much higher up and not saggy at all. I know they will drop and settle a bit, but I think that would be a good thing as long as it’s not too far. I still really want them to look as natural as possible and so far my PS has done a great job at helping them look normal and I really appreciate that.
On a positive note - I had NO NAUSEA again! The scopolamine patch does wonders! The anesthesiologist also had me take Emend and put some other anti-nausea medication in my IV. It is really such a relief to wake up and not feel horrendous, like after my mastectomy surgery. I am so appreciative to the women on Facebook BRCA Sisterhood for their support and telling me about the scopolamine patch! I am sooooo thankful! Another positive note – NO DRAINS!! As I said in my previous post, my PS thought I would probably have drains in this time, so I had prepared myself to have those pesky things hanging from my body. However, when I woke up in the recovery room and asked about drains…viola!...no drains this time! It is just one less annoyance, two less scars and no worrying about accidentally pulling them out.
As of right now, I’m sitting in a relaxing recliner chair and only in minimal pain and discomfort. I still feel fuzzy and tired, probably from the anesthesia. My sweet, sweet husband is taking care of me and everything else, while working from home! He’s done everything from taking the boys to school, helping me with a shower and brushing my hair, making me a yummy lunch and breakfast, refilling my ice bags and even gives me “the LOOK” when I try to get up and get myself a glass of water. I am so blessed to have the most amazing, loving and thoughtful husband. He is wonderful!
Until next time, here’s to a quick recovery, no more surgeries and silicone that stays where it should! :)
Wednesday, March 2, 2011
Let the Nerves Begin ...
So, this weekend it all of a sudden hit me smack in the face. Bam! Oh boy! I’m having surgery in less than a week! It started on Saturday and continued getting worse on Sunday, which consequently, just happened to be my birthday. So, in addition to realizing I was another year older (which never used to make a difference one way or another), my head started messing with me. Don’t get me wrong. I have had the surgery at the fore front of my mind for a while. Knowing it was coming up I’ve started to get things in order around the house as I will not be able to lift, scrub, vacuum, etc. for a bit again. Coupled with “nesting”-like behavior, I’ve started to freak myself out with the “what ifs?”. Now, I know that it makes no sense, and there is no correlation, but I’ve started to worry that I had been feeling so confident that this surgery would be just as “easy” as the exchange surgery in August or even “easier”. (I put “easy” in quotes because let’s be honest, it’s not really easy, but in comparison to the mastectomy surgery it is a WHOLE LOT easier. The mastectomy surgery is in a league of its own.)
My point being, I started to worry that maybe I had been jinxing myself by thinking this surgery wouldn’t be so bad. What if I used all of my good luck for not having any major complications on my first two surgeries? I have been very blessed so far. What if I’m not remembering things as well as I think and maybe things were more difficult after the exchange surgery than my brain is allowing me to remember? On Sunday night, my head started playing tricks on me and my stomach started doing flips and somersaults, like it was in a circus. The reality that I was putting my body through another surgery in five days was presenting itself full force. No matter how calm and in control I had convinced myself that I was, I am still human. Any surgery, no matter how big or small has risks and can make one nervous. I especially don’t like having to rely on others so much post-surgery, and feeling like I’m putting other people out. I will have another lifting restriction of 5-10 lbs (about a gallon of milk) for 7-14 days. There will probably be drains put in again (for at least a few days) and I will have to rely on my husband or dad to drive the boys to and from school, among other things. It’s just hard to not be able to do the normal things I do daily for my family, let alone simple things for myself.
I had my pre-op appointment Monday and they had to reschedule the surgery due to a more pressing surgery my doctor needs to coordinate along with three other surgeons. So instead of my surgery being on March 4, it is now scheduled for Tuesday, March 8. Just one more thing…now my waiting time doubled from 4 days to 8 days! As if I wasn’t already worrying and ready to get it over with, now I have to wait twice as long! I know in the grand scheme of things it’s really not much time, but it still threw a wrench in my emotional preparation and plans. My poor husband already had Friday scheduled off and had a business trip in the works for next week. Now he has to rework his entire schedule and can’t go on the trip. Not that he’s complaining about it (he hates having to travel all of the time anyway!), but I still feel badly. I also had to reschedule with my dad to watch the boys during surgery. I’m sure it’s really not as bad as I’m feeling it is right now, but I hate inconveniencing people, especially when they are already doing so much for me. Plus, let’s face it – I’m a bit emotional right now. My husband has of course been amazing about the whole thing and my dad said whenever we need him, he’s there.
I am sure all of the frustration with the moved surgery just comes from already starting to freak out a bit. I had a lot of questions for my plastic surgeon and she answered all of them. I first asked her what she was going to do to try to keep the implants from falling so much this time around. She said she would be moving them back up and more towards the middle (they have been migrating under the arms a bit like with the expanders, but not quite as drastically). She would use more Alloderm, or perhaps try Strattice, where ever it looked like it was needed and would assist in reinforcing the pocket. She is also going to stitch up the sides internally, as before, to help the pockets heal and maintain their structure. I asked about what we do if the implants fall this much again after this 3rd surgery. That full answer was much less comforting, although she first said she had a lot of confidence that we would be able to make them much better this go around. One of her solutions is to drop to a smaller size of implant. Honestly, I don’t like that answer at all because I am already smaller than my natural size was. But what she explained made perfect sense. She said it was the weight of the implants that was adding to the stretching and dropping. However, she confirmed that due to my height, she was afraid if we went smaller I would feel very flat chested. I really hope that isn’t a road we have to go down. I asked a lot of other usual before-surgery questions and she took the time, as always, to answer them all until I was comfortable.
So, for now I am feeling more confident that I haven’t jinxed the surgery, and as my sister told me, I have to think positively. (Boy, how the tables have turned! That always used to be my line to her!) This post may sound a bit negative, but I was trying to honestly vent my feelings that crept up on me the last couple of days. They really kind of hit me like a ton of bricks! I am still nervous and still feel like there is too much to do prior, even though I was given 4 extra days, but also just want to get it over with and be done with these surgeries. It would be nice to be a part of the “All Done Club” as some ladies call it.
Until next time, here’s to structurally sound implant pockets, calmer nerves and positive thinking! :)
My point being, I started to worry that maybe I had been jinxing myself by thinking this surgery wouldn’t be so bad. What if I used all of my good luck for not having any major complications on my first two surgeries? I have been very blessed so far. What if I’m not remembering things as well as I think and maybe things were more difficult after the exchange surgery than my brain is allowing me to remember? On Sunday night, my head started playing tricks on me and my stomach started doing flips and somersaults, like it was in a circus. The reality that I was putting my body through another surgery in five days was presenting itself full force. No matter how calm and in control I had convinced myself that I was, I am still human. Any surgery, no matter how big or small has risks and can make one nervous. I especially don’t like having to rely on others so much post-surgery, and feeling like I’m putting other people out. I will have another lifting restriction of 5-10 lbs (about a gallon of milk) for 7-14 days. There will probably be drains put in again (for at least a few days) and I will have to rely on my husband or dad to drive the boys to and from school, among other things. It’s just hard to not be able to do the normal things I do daily for my family, let alone simple things for myself.
I had my pre-op appointment Monday and they had to reschedule the surgery due to a more pressing surgery my doctor needs to coordinate along with three other surgeons. So instead of my surgery being on March 4, it is now scheduled for Tuesday, March 8. Just one more thing…now my waiting time doubled from 4 days to 8 days! As if I wasn’t already worrying and ready to get it over with, now I have to wait twice as long! I know in the grand scheme of things it’s really not much time, but it still threw a wrench in my emotional preparation and plans. My poor husband already had Friday scheduled off and had a business trip in the works for next week. Now he has to rework his entire schedule and can’t go on the trip. Not that he’s complaining about it (he hates having to travel all of the time anyway!), but I still feel badly. I also had to reschedule with my dad to watch the boys during surgery. I’m sure it’s really not as bad as I’m feeling it is right now, but I hate inconveniencing people, especially when they are already doing so much for me. Plus, let’s face it – I’m a bit emotional right now. My husband has of course been amazing about the whole thing and my dad said whenever we need him, he’s there.
I am sure all of the frustration with the moved surgery just comes from already starting to freak out a bit. I had a lot of questions for my plastic surgeon and she answered all of them. I first asked her what she was going to do to try to keep the implants from falling so much this time around. She said she would be moving them back up and more towards the middle (they have been migrating under the arms a bit like with the expanders, but not quite as drastically). She would use more Alloderm, or perhaps try Strattice, where ever it looked like it was needed and would assist in reinforcing the pocket. She is also going to stitch up the sides internally, as before, to help the pockets heal and maintain their structure. I asked about what we do if the implants fall this much again after this 3rd surgery. That full answer was much less comforting, although she first said she had a lot of confidence that we would be able to make them much better this go around. One of her solutions is to drop to a smaller size of implant. Honestly, I don’t like that answer at all because I am already smaller than my natural size was. But what she explained made perfect sense. She said it was the weight of the implants that was adding to the stretching and dropping. However, she confirmed that due to my height, she was afraid if we went smaller I would feel very flat chested. I really hope that isn’t a road we have to go down. I asked a lot of other usual before-surgery questions and she took the time, as always, to answer them all until I was comfortable.
So, for now I am feeling more confident that I haven’t jinxed the surgery, and as my sister told me, I have to think positively. (Boy, how the tables have turned! That always used to be my line to her!) This post may sound a bit negative, but I was trying to honestly vent my feelings that crept up on me the last couple of days. They really kind of hit me like a ton of bricks! I am still nervous and still feel like there is too much to do prior, even though I was given 4 extra days, but also just want to get it over with and be done with these surgeries. It would be nice to be a part of the “All Done Club” as some ladies call it.
Until next time, here’s to structurally sound implant pockets, calmer nerves and positive thinking! :)
Thursday, February 3, 2011
Back Under the Knife
So, it’s been a bit since my last post. I guess that was for several reasons. First, from the end of October to mid December we had visiting guests for almost 5 of those 8 weeks, the boys were off the whole week of Thanksgiving and 2 weeks for Christmas and we traveled for the holidays. In addition, after enveloping myself with BRCA-this, surgery-that, recovery-this, fake boob-that, I honestly just needed a little reprieve to focus on family and friends. It was really nice to not focus too much on surgeries and recoveries and just deal with normal life for a bit. Of course, that is not to say that my BRCA situation left my thoughts - just that I tried to put them on the back burner for bit.
Here’s a quick reminder of where I’m currently at in the entire prophylactic surgery process. Last April 23rd I had my skin-sparing, nipple-sparing bilateral prophylactic mastectomy with 2-step reconstruction. In the initial surgery, they removed all of my “normal” tissue and placed expanders underneath my chest wall muscle. I did not need the usual fills of the expanders because my plastic surgeon placed all 800cc under my muscle right off the bat (and, by the way, I’m pretty sure that’s not normal!). August 5, 2010 I had my exchange surgery, where they replaced the expander with an implant (silicone in my case). Best case scenario the exchange surgery would be the final surgery, but that is not going to be the case for me, nor is it the case for many women enduring these surgeries.
If I’m being totally honest and upfront, I wasn’t too pleased following my exchange. Only a week or so after, I already felt like the left side was still too low and definitely lower than the right side. Also, as I said in my previous post in August, the implants seemed smaller than my real breasts, but they are the largest silicone implant size. I suppose they could be larger if I wanted saline, but I picked the silicone because I liked the fact that they seemed to feel more “real.” So overall, I wasn’t exactly happy with the new rack (sorry to disappoint you Kir!). I think I also find it frustrating because people in general just assume they must be great because they are fake, but this isn’t like getting a boob job. This is under the muscle and with no other tissue there at all. My plastic surgeon noticed right away how the left side had already started sliding and we decided to wait it out to see how much it was going to fall and what the right side was going to do. Currently, they have both fallen quite a bit, lefty more than righty, but nowhere near the unevenness I had prior to the exchange surgery and they are a bit more durable, so a bra mostly fixes it.
Needless to say, I am going back into surgery; this time a revision surgery on March 4. My plastic surgeon is going to use more alloderm and extra stitches to try to create a stronger pocket that hopefully won’t give as much as has happened with the last two surgeries. I kind of feel like I’m being picky, but there is an empty sunken area above my left breast, especially if I raise my arm, because of how far the implant has fallen. They are both a bit too far over, underneath my arms again too. I feel very lucky that my plastic surgeon has done a wonderful job to make them look natural, so I hope she can fix them and still keep the natural look. Even with no shirt on, besides the scars underneath each breast I’m not sure how noticeable it is. My foobs don’t look fake.
There is another part that no one tells you about and for some reason you don’t think about it prior to surgery, probably because you have no idea really what to expect. But, because the implants are under the chest wall muscle, certain movements squish and deform the breast. For example, push-up like movements, like laying on the floor on your stomach and then getting up from that position, or bending, reaching down for something or raising your arm. It’s actually really strange, and I guess I’m already more used to it, but it’s kind of annoying and frustrating. I know I’m probably being pretty picky with this because in reality no one can probably notice this but me, but I’ve tried to be honest through this journey and share things that may be helpful to other women.
Wow, I feel like I sound like I’m complaining and being whiney… I really apologize for that because in reality I do understand how very fortunate and blessed I have been with regard to my surgeries. I have had very minimal complications/problems and I know women who have practically been through hell and back. This is not an easy process, and even though we all hope ours will be as easy as possible, I think we all know it can only go so smoothly. I mean look at what we are putting our bodies through – physically, emotionally, psychologically. It is a permanent change – it cannot be undone, no take-backs. This was and wasn’t an easy choice as I’ve described previously. With up to an 87% lifetime risk of developing breast cancer it felt like I was just waiting to get cancer, not wondering if I was going to get it. But it is not an easy choice to remove a healthy part of your body. Especially parts that, let’s face it, make you feel like a woman. Do I regret my decision to have the prophylactic surgery? No, not one bit actually – despite the tone of this post. I have had an immense amount of relief since my first surgery. I used to worry during self breast exams that I must be missing “IT” and the cancer was there I just wasn’t checking my breasts correctly or didn’t know what cancer should feel like. I’d worry during and after my screening tests (MRI’s, mammograms, and ultrasounds) that the technicians or radiologists might not take something small seriously enough because of my age. I’d think to myself, “But do they truly understand my risk? Something they think is insignificant in a normal 30 year old (or younger) may actually be very important to pay attention to in me.” I know that sounds a little paranoid, but I watched my Mom go through breast and ovarian cancers at young ages and to be honest, I think cancer is somewhat ingrained in my head as a death sentence. So, overall even though at the moment things aren’t perfect [and the natural ones were,… NOT! :)], I would still make the same choice all over again. I feel a bit guilty like I’m being a little picky, but my family has been amazing at helping me feel better about that. First, my Mother-in-law has said “If you have to go through all of this, you might as well be happy with the results.” And I thought, “You’re right! It sucks to go through all of this, so I should at least be able to feel satisfied with the results!” So true! And then my sister-in-law compared it to having a baby – She said to think about it as if you had a baby and the labor and delivery were smooth and easy, but your friend had are really difficult, painful delivery. You wouldn’t feel guilty that yours was easy just because your friend’s was hard; you would feel blessed that yours went so well. And that clicked in my head. So, I am going to stop feeling guilty for having few complications throughout my surgeries and be more thankful for my countless blessings.
If you are still reading this – THANK YOU! Thank you for hanging in there with me through my whirlwind of emotions and thoughts. I just had a lot to share and catch everyone up on since it’s been so long since my last post. I truly appreciate all of the support!
Until next time, here’s to venting, blessings and uneven silicone…oops I meant silicone! :)
Here’s a quick reminder of where I’m currently at in the entire prophylactic surgery process. Last April 23rd I had my skin-sparing, nipple-sparing bilateral prophylactic mastectomy with 2-step reconstruction. In the initial surgery, they removed all of my “normal” tissue and placed expanders underneath my chest wall muscle. I did not need the usual fills of the expanders because my plastic surgeon placed all 800cc under my muscle right off the bat (and, by the way, I’m pretty sure that’s not normal!). August 5, 2010 I had my exchange surgery, where they replaced the expander with an implant (silicone in my case). Best case scenario the exchange surgery would be the final surgery, but that is not going to be the case for me, nor is it the case for many women enduring these surgeries.
If I’m being totally honest and upfront, I wasn’t too pleased following my exchange. Only a week or so after, I already felt like the left side was still too low and definitely lower than the right side. Also, as I said in my previous post in August, the implants seemed smaller than my real breasts, but they are the largest silicone implant size. I suppose they could be larger if I wanted saline, but I picked the silicone because I liked the fact that they seemed to feel more “real.” So overall, I wasn’t exactly happy with the new rack (sorry to disappoint you Kir!). I think I also find it frustrating because people in general just assume they must be great because they are fake, but this isn’t like getting a boob job. This is under the muscle and with no other tissue there at all. My plastic surgeon noticed right away how the left side had already started sliding and we decided to wait it out to see how much it was going to fall and what the right side was going to do. Currently, they have both fallen quite a bit, lefty more than righty, but nowhere near the unevenness I had prior to the exchange surgery and they are a bit more durable, so a bra mostly fixes it.
Needless to say, I am going back into surgery; this time a revision surgery on March 4. My plastic surgeon is going to use more alloderm and extra stitches to try to create a stronger pocket that hopefully won’t give as much as has happened with the last two surgeries. I kind of feel like I’m being picky, but there is an empty sunken area above my left breast, especially if I raise my arm, because of how far the implant has fallen. They are both a bit too far over, underneath my arms again too. I feel very lucky that my plastic surgeon has done a wonderful job to make them look natural, so I hope she can fix them and still keep the natural look. Even with no shirt on, besides the scars underneath each breast I’m not sure how noticeable it is. My foobs don’t look fake.
There is another part that no one tells you about and for some reason you don’t think about it prior to surgery, probably because you have no idea really what to expect. But, because the implants are under the chest wall muscle, certain movements squish and deform the breast. For example, push-up like movements, like laying on the floor on your stomach and then getting up from that position, or bending, reaching down for something or raising your arm. It’s actually really strange, and I guess I’m already more used to it, but it’s kind of annoying and frustrating. I know I’m probably being pretty picky with this because in reality no one can probably notice this but me, but I’ve tried to be honest through this journey and share things that may be helpful to other women.
Wow, I feel like I sound like I’m complaining and being whiney… I really apologize for that because in reality I do understand how very fortunate and blessed I have been with regard to my surgeries. I have had very minimal complications/problems and I know women who have practically been through hell and back. This is not an easy process, and even though we all hope ours will be as easy as possible, I think we all know it can only go so smoothly. I mean look at what we are putting our bodies through – physically, emotionally, psychologically. It is a permanent change – it cannot be undone, no take-backs. This was and wasn’t an easy choice as I’ve described previously. With up to an 87% lifetime risk of developing breast cancer it felt like I was just waiting to get cancer, not wondering if I was going to get it. But it is not an easy choice to remove a healthy part of your body. Especially parts that, let’s face it, make you feel like a woman. Do I regret my decision to have the prophylactic surgery? No, not one bit actually – despite the tone of this post. I have had an immense amount of relief since my first surgery. I used to worry during self breast exams that I must be missing “IT” and the cancer was there I just wasn’t checking my breasts correctly or didn’t know what cancer should feel like. I’d worry during and after my screening tests (MRI’s, mammograms, and ultrasounds) that the technicians or radiologists might not take something small seriously enough because of my age. I’d think to myself, “But do they truly understand my risk? Something they think is insignificant in a normal 30 year old (or younger) may actually be very important to pay attention to in me.” I know that sounds a little paranoid, but I watched my Mom go through breast and ovarian cancers at young ages and to be honest, I think cancer is somewhat ingrained in my head as a death sentence. So, overall even though at the moment things aren’t perfect [and the natural ones were,… NOT! :)], I would still make the same choice all over again. I feel a bit guilty like I’m being a little picky, but my family has been amazing at helping me feel better about that. First, my Mother-in-law has said “If you have to go through all of this, you might as well be happy with the results.” And I thought, “You’re right! It sucks to go through all of this, so I should at least be able to feel satisfied with the results!” So true! And then my sister-in-law compared it to having a baby – She said to think about it as if you had a baby and the labor and delivery were smooth and easy, but your friend had are really difficult, painful delivery. You wouldn’t feel guilty that yours was easy just because your friend’s was hard; you would feel blessed that yours went so well. And that clicked in my head. So, I am going to stop feeling guilty for having few complications throughout my surgeries and be more thankful for my countless blessings.
If you are still reading this – THANK YOU! Thank you for hanging in there with me through my whirlwind of emotions and thoughts. I just had a lot to share and catch everyone up on since it’s been so long since my last post. I truly appreciate all of the support!
Until next time, here’s to venting, blessings and uneven silicone…oops I meant silicone! :)
Saturday, October 23, 2010
The Sisterhoods Among Us
Just to put it out there first off – I am absolutely blessed to have the rockstar husband that I do! He is a tremendous support and we are pretty much one being. I honestly don’t know what my life would be without him. Also, my Dad, Father-in-law, and brother-in-laws have all always been so wonderful and supportive of me too, however, they are not female! And this post is dedicated to the AMAZING women in my life!
There is something about having strong women in your life that truly makes a difference. A HUGE difference! Sometimes you feel a certain way or need someone to understand, commiserate, empathize or sympathize with you and for some reason only a woman can be that person. I have had excellent examples of strong women throughout my life. My Mother was strong, brave, loving, sweet and funny (to list just a few). She taught me so many wonderful things and had an impact on many lives. At her work at the university she was always referred to as the “Mom away from home.” Something she wrote to me in a letter when I was away doing an apprenticeship before my senior year in high school is something I reflect on often. She had said if she could, she would take away all of the bad things that happen to me and make everything good all the time. She then said that “without the bad times the good times wouldn’t seem so good”. That is so true! If things were always wonderful, what would you have to compare them with to know that they are indeed wonderful? I feel cheated to have lost out on so many years with my Mom, but blessed to have had her for 18 years.
I am extremely fortunate to have been blessed with such an amazing Mother-in-law, who has been through a lot with me: my Mother’s death, my wedding, my college graduations, the birth of my babies, and my recent decisions and surgeries regarding my BRCA1 status. She has been a rock for me and has always treated me like one of her daughters. She came and stayed with us for two weeks following my initial mastectomy surgery. She took wonderful care of the boys, cooked, cleaned, did laundry, made beds, shopped and of course took excellent care of me! I am so lucky to have her.
I have also been blessed in life with 2 sisters and 4 sister-in-laws (whom I’ve known since I was 14!). My sisters (all of them above!) are an incredibly important part of my life. Something my Mother always told us girls was to be nice to one another because one day we were all each other might have. These wonderful ladies have lent ears, given advice and been solid supports through all of this. As a collective unit they came to the hospital every day, made me a surgery basket (that included everything but the kitchen sick!), picked up food and goodies for my husband, brought dinners, sent flowers and goody baskets, called, sent supporting, loving texts, cards and messages, and even dry-washed and brushed my hair when I was still in the hospital and not able to shower yet! My sisters are so sweet and kind – I love them so!
I also have several close female friends who are truly wonderful women who have been so sweet and supportive to me for, well, as long as I’ve known them! One of my dear friends told me she couldn’t figure out how to send yummy hot lasagna, so chocolate and coffee would have to do! Oh darn! I guess if I have to suffer, I’ll force myself to eat chocolate and drink coffee *sigh*! :)
I am so thankful to my family, including many fantastic aunties, and friends – they mean the world to me.
During my search for support and information regarding my choices and decisions for being BRCA1 positive, I found many support groups. FORCE (Facing Our Risk of Cancer Empowered), I already blogged about here. Another one is BRCA Sisterhood on Facebook. It was started by Teri Smieja and Karen Malkin-Lazarovitz. BRCA Sisterhood is a place where you can post anything you need to ask, share or vent about: questions regarding surgeries, screening, doctor appointments, concerns, fears, triumphs, etc. I have found the ladies on this site to be so sincere, helpful and understanding. They are there to lend an ear, ease your worries, tame your fears, or just give you a virtual hug when that’s all that can be said at times. One of the kind ladies on the Sisterhood mentioned the nausea patch to me after my horrendous experience after my initial surgery. Having that tidbit of information allowed me to ask my doctor and get a major reprieve from nausea after my second surgery! What I’m trying to say is it’s extremely helpful to have a support base that truly understands what you are going through and what you are feeling. My family means the world to me, but it has also been a blessing to have found BRCA Sisterhood and have another group of women that want to help, listen and love.
Below is the definition of sisterhood:
Main Entry: sis•ter•hood
Function: noun
Date: 14th century
1 a : the state of being a sister b : sisterly relationship
2 : a community or society of sisters; especially : a society of women in a religious order
3 : the solidarity of women based on shared conditions, experiences, or concerns
(http://www.merriam-webster.com/dictionary/sisterhood)
I especially love #3 “the solidarity of women based on shared conditions, experiences, or concerns.” Doesn’t that seem to include all of us? Even our mothers and friends are part of a sisterhood with us because of a solidarity we all share, even if it’s just being a woman. That is the remarkable thing about women – we bond with each other. Even if it’s not someone we know all that well – we are willing to help, listen, and share. We want to help others out and don’t like to see someone suffer or feel alone. We are there for each other because that’s what we do. I am so happy to be a part of numerous sisterhoods in which I have created everlasting bonds with wonderful women who have taught me how to be a better woman.
From the bottom of my heart, THANK YOU! All of you tremendous women in my life who have shown me love, compassion, kindness, strength, bravery and courage. I am forever in your debt.
Until next time, here’s to WOMEN, STRENGTH and SISTERHOODS!
There is something about having strong women in your life that truly makes a difference. A HUGE difference! Sometimes you feel a certain way or need someone to understand, commiserate, empathize or sympathize with you and for some reason only a woman can be that person. I have had excellent examples of strong women throughout my life. My Mother was strong, brave, loving, sweet and funny (to list just a few). She taught me so many wonderful things and had an impact on many lives. At her work at the university she was always referred to as the “Mom away from home.” Something she wrote to me in a letter when I was away doing an apprenticeship before my senior year in high school is something I reflect on often. She had said if she could, she would take away all of the bad things that happen to me and make everything good all the time. She then said that “without the bad times the good times wouldn’t seem so good”. That is so true! If things were always wonderful, what would you have to compare them with to know that they are indeed wonderful? I feel cheated to have lost out on so many years with my Mom, but blessed to have had her for 18 years.
I am extremely fortunate to have been blessed with such an amazing Mother-in-law, who has been through a lot with me: my Mother’s death, my wedding, my college graduations, the birth of my babies, and my recent decisions and surgeries regarding my BRCA1 status. She has been a rock for me and has always treated me like one of her daughters. She came and stayed with us for two weeks following my initial mastectomy surgery. She took wonderful care of the boys, cooked, cleaned, did laundry, made beds, shopped and of course took excellent care of me! I am so lucky to have her.
I have also been blessed in life with 2 sisters and 4 sister-in-laws (whom I’ve known since I was 14!). My sisters (all of them above!) are an incredibly important part of my life. Something my Mother always told us girls was to be nice to one another because one day we were all each other might have. These wonderful ladies have lent ears, given advice and been solid supports through all of this. As a collective unit they came to the hospital every day, made me a surgery basket (that included everything but the kitchen sick!), picked up food and goodies for my husband, brought dinners, sent flowers and goody baskets, called, sent supporting, loving texts, cards and messages, and even dry-washed and brushed my hair when I was still in the hospital and not able to shower yet! My sisters are so sweet and kind – I love them so!
I also have several close female friends who are truly wonderful women who have been so sweet and supportive to me for, well, as long as I’ve known them! One of my dear friends told me she couldn’t figure out how to send yummy hot lasagna, so chocolate and coffee would have to do! Oh darn! I guess if I have to suffer, I’ll force myself to eat chocolate and drink coffee *sigh*! :)
I am so thankful to my family, including many fantastic aunties, and friends – they mean the world to me.
During my search for support and information regarding my choices and decisions for being BRCA1 positive, I found many support groups. FORCE (Facing Our Risk of Cancer Empowered), I already blogged about here. Another one is BRCA Sisterhood on Facebook. It was started by Teri Smieja and Karen Malkin-Lazarovitz. BRCA Sisterhood is a place where you can post anything you need to ask, share or vent about: questions regarding surgeries, screening, doctor appointments, concerns, fears, triumphs, etc. I have found the ladies on this site to be so sincere, helpful and understanding. They are there to lend an ear, ease your worries, tame your fears, or just give you a virtual hug when that’s all that can be said at times. One of the kind ladies on the Sisterhood mentioned the nausea patch to me after my horrendous experience after my initial surgery. Having that tidbit of information allowed me to ask my doctor and get a major reprieve from nausea after my second surgery! What I’m trying to say is it’s extremely helpful to have a support base that truly understands what you are going through and what you are feeling. My family means the world to me, but it has also been a blessing to have found BRCA Sisterhood and have another group of women that want to help, listen and love.
Below is the definition of sisterhood:
Main Entry: sis•ter•hood
Function: noun
Date: 14th century
1 a : the state of being a sister b : sisterly relationship
2 : a community or society of sisters; especially : a society of women in a religious order
3 : the solidarity of women based on shared conditions, experiences, or concerns
(http://www.merriam-webster.com/dictionary/sisterhood)
I especially love #3 “the solidarity of women based on shared conditions, experiences, or concerns.” Doesn’t that seem to include all of us? Even our mothers and friends are part of a sisterhood with us because of a solidarity we all share, even if it’s just being a woman. That is the remarkable thing about women – we bond with each other. Even if it’s not someone we know all that well – we are willing to help, listen, and share. We want to help others out and don’t like to see someone suffer or feel alone. We are there for each other because that’s what we do. I am so happy to be a part of numerous sisterhoods in which I have created everlasting bonds with wonderful women who have taught me how to be a better woman.
From the bottom of my heart, THANK YOU! All of you tremendous women in my life who have shown me love, compassion, kindness, strength, bravery and courage. I am forever in your debt.
Until next time, here’s to WOMEN, STRENGTH and SISTERHOODS!
Tuesday, September 7, 2010
September is Ovarian Cancer Awareness Month
September is Ovarian Cancer Awareness Month. Those of you who know me, have read my “About me section” or have been following my blog know that I lost my Mother to ovarian cancer when I was 18. She was only 49. We also lost my aunt to ovarian cancer when she was 52 and my great grandmother to ovarian cancer when she was 43. My Mother’s and aunt’s stories about their ovarian cancer diagnoses are very different. My aunt had been having severe stomach pain (especially after she ate), shooting pain down her legs and horrible periods for a while and went to see her doctor. He told her he thought the pain was caused from her high stress levels and to go home and do stress exercises. She eventually got a second opinion and they could actually feel the tumor before even running any tests. She was diagnosed at, age 50, with Stage IIIb ovarian cancer that was already on the liver. On the other side of the spectrum, my Mom found hers early. She was having very bad side pains that eventually made my Dad talk her into going to the ER. They thought it was her appendix and as they were in surgery, they found that one of her ovaries had gangrene (years before she had had her tubes tied). They took that ovary out, but left the other one in and when they performed pathology determined she had Stage II ovarian cancer. I was only 14 at the time and my Dad had been with her the entire time in the hospital and left to pick me and my sister up from school to bring us to see my Mom. During those 20-30 minutes (seriously, the hospital is just down the road from the schools), a doctor came into my Mom’s room and told her she had ovarian cancer and there was nothing he could do for her but make her comfortable for the next six months. My poor Mom! It had only been about 4 months since she lost her sister to the same disease and now she finds out she has it too. Luckily, my parents decided that doctor was a jerk and got a second opinion. I believe that is probably why she lived long enough to see me graduate from high school (about 4.5 years longer). I suppose she may have only had 6 months to live had she just assumed that doctor knew exactly what he was doing and had listened to him.
I wanted to share the details with you because ovarian cancer is known as the silent killer. Ovarian cancer survival rates are much lower than many other cancers that affect women. The symptoms that seem to be most associated with it can often be mistaken for other health issues, which in turn can contribute to a later stage diagnosis. To spread awareness of 4 main symptoms of ovarian cancer, several organizations, including the Ovarian Cancer National Alliance, the National Ovarian Cancer Coalition (NOCC), the Ovarian Cancer Research Fund (OCRF) and the Gynecologic Cancer Foundation (GCF) have combined forces to spread the word, BEAT. BEAT stands for Bloating that is persistent, Eating less and feeling fuller, Abdominal pain, and Trouble with your bladder. Additional symptoms commonly reported include fatigue, indigestion, back pain, pain with intercourse, constipation and menstrual irregularities; however it is important to note that these occur at an equal rate in the normal population of women without ovarian cancer (http://www.ovariancancer.org/). A woman in the normal population has a lifetime risk of about 1.4% and women with a BRCA1 or BRCA2 mutation have a lifetime risk ranging from 10-60% of developing ovarian cancer. The 5- and 10-year relative survival rates for ovarian cancer patients are 46% and 39%, respectively (http://www.ovariancancer.org/). The survival rates, of course, vary depending on the diagnosis stage. Although mortality rates for many cancers have decreased over the last 30 years, ovarian cancer mortality rates have remained unchanged. The Ovarian Cancer National Alliance has a wealth of information and statistics and also flyers to spread the word on BEAT (http://www.ovariancancer.org/).
The main message of this post is to please be aware of your body and trust that you know your body better than anyone else. Trust your instincts and be your own health advocate. Maybe spreading a little knowledge on known symptoms will one day help a woman get to her doctor a bit quicker than she normally would have. Please pay attention to your body, know your family history and stay persistent. Awareness and knowledge are power!
Oh and go teal this month! It’s the ovarian cancer awareness color. Check out Teal Toes!
Until next time, know and spread the word of BEAT, pay attention to your body, and stay healthy! :)
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